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18-Year-Old With 'Butterfly Skin' Wants People to See Past His Excruciating Skin Disorder | Inside Edition
![Mum whose baby died from rare form of butterfly skin disease urges women to run for the cause - Irish Mirror Online Mum whose baby died from rare form of butterfly skin disease urges women to run for the cause - Irish Mirror Online](https://i2-prod.irishmirror.ie/news/irish-news/article10176378.ece/ALTERNATES/s615/lola-butterfly-skin-disease.jpg)
Mum whose baby died from rare form of butterfly skin disease urges women to run for the cause - Irish Mirror Online
![Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table](https://www.thesun.co.uk/wp-content/uploads/2018/01/nintchdbpict000381479107.jpg)
Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table
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Wisconsin teen diagnosed with cancer while battling rare 'butterfly skin' disease: 'He is resilient' | Fox News
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I've been left in agony with my 'butterfly skin' condition because people have stockpiled paracetamol' | Marie Claire
![My dear friend Liz (RIP). She suffered from a rare skin disease called epidermolysis bullosa (EB). | Epidermolysis bullosa, Skin disorders, Skin diseases My dear friend Liz (RIP). She suffered from a rare skin disease called epidermolysis bullosa (EB). | Epidermolysis bullosa, Skin disorders, Skin diseases](https://i.pinimg.com/originals/f5/46/46/f54646645cc22e83564cafef8f88d5ce.jpg)
My dear friend Liz (RIP). She suffered from a rare skin disease called epidermolysis bullosa (EB). | Epidermolysis bullosa, Skin disorders, Skin diseases
There are days she's screaming so much we're all in tears' - parents of 'butterfly skin' children appeal to Dáil for help
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